Welcome to our world

In our last post, we announced that Scott and Mark are attempting the National 3 Peaks challenge this year. With 5 walkers we decided to go with 5 charities. Scott’s choice was a no-brainer. When he was 2 years old a family moved into our street in Romsey. They had a young boy called Nick, a year older than Scott who suffered from a genetic ailment called Barth Syndrome. We knew very little about this disease and this was common, the syndrome had only recently been discovered and more information was being discovered. This genetic condition affecting only boys can cause the following symptoms: see the medical brochure

● Cardiomyopathy – Heart failure or heart muscle weakness
● Neutropenia – weakness in the immune system (specifically reduced “neutrophils”, a type of white blood cell used in fighting bacterial infections)
● Muscle Weakness and General Fatigue
● Growth Delay – that can be substantial until late teenage years

They became best friends (this is them today)
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and so for Scott the opportunity to raise money for his best friends charity which is led by Nick’s mother Michaela is a privilege. Scott is doing something that because of his condition Nick would never be able to do.

Scott is completing the challenge to raise money for Barth Syndrome Trust, a charity that is set up to help diagnosis, fund research and provide support to families with Barth boys.

So far he has been training in the southern uplands of the Scottish borders. A spectacular walk on White Coomb (804m)via the Grey Mares Tail waterfall, the local Tinto Hill (707m), an early morning start on Coulter Fell (748m) & Broad Law (840m), the highest peak in the southern uplands. The weather has thwarted his first attempt at Ben Nevis this easter break, so it looks like his first trip on the three peaks will be for the 24 hour attempt.

Grey Mares Tail

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Tinto
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Broad Law
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Culter Fell
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You can sponsor Scott and the others doing the challenge online by visiting www.sponsor-me.org/3peaks2012
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Follow our progress, training and preparations on our Facebook page FB/3Peaks2012 or twitter @3Peaks2012

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